Today one of my good friend's has her hen do in a European country (still secret, so I can't say which). I was invited whilst able bodied. I paid an £80 deposit. I obviously am not in a position to go as I cannot self propel and there will be cobbled streets and a beach.… Continue reading Sick of missing out
Hi there Nick, I am sorry to mess you about, but am I able to take up your offer of starting the program again in September once the building is accessible? I have been struggling with this same flare up for over a week now and although rest has helped me feel slightly better, I'm… Continue reading Opting out of Mindfulness Group…
It's my MCP joint on my thumbs (mainly left) that is becoming deformed and arthritic from hyperextending. Apparently, this is super common in EDS. All the metal splints are expensive but if it will save my ability to grip, I think it's worth it. I would really like some professional guidance on this before buying… Continue reading MCP Joint ring splint
"The outcome of your work capability assessment Based on the outcome of your assessment, the questionnaire you completed and any further information you provided, we have decided that you have limited capability for work and limited capability for work-related activity. This means that you are not required to look for work… Continue reading Common sense prevails again!
I have been saying I want a professional foot massage and pedicure since January. I'd like one because I struggle to paint my own toes neatly, but I also get a lot of foot pain, so I really feel like a foot massage would help alleviate this pain. It hasn't happened yet. It's now nearly… Continue reading Another shitty day
The wheelchair assessment went really well. The OT called in a senior colleague to discuss how best to avoid putting additional strain on my upper body. They are going to discuss it with their peers and come back to me, but they demonstrated an active user manual chair. They would also like me to have… Continue reading Today is cancelled – a “full reset day” required